Having lost my beloved Bono to heart failure 3 days ago, I would like to do something positive and offer advice to any moms or dads whose baby is going through what Bono went through, so they'll know what to expect, the warning signs. Hindsight is a wonderful thing, and there's much I'd have done differently.
Bono was diagnosed with a heart murmur when he was 3. When he was 6, he was scanned and diagnosed with Mithral Valve Disease/Endocardiosis, and a Grade 5 Heart Murmur.
He was diagnosed with being in the early stages of Congestive Heart Failure in April this year, and after taking a bad turn on Monday afternoon, slipped into heart failure and passed away. He was 8 years, 6 months and 23 days old.
If your baby is suffering from the same or similar, I'd be happy to offer support and advice.
Gillian